During my last doctor's visit, I had a Freudian slip. I have a few back burner items that I have not talked to my doctor about yet, but I think it may be time to move this item up to the forefront.
Last visit, I tried to say 'IHS' for International Headache Society. Instead, I said 'IIH' which is an acronym for Idiopathic Intracranial Hypertension that is also known as PTC, Psudotumor Ceribri. IIH is an increased level of spinal fluid which can contribute to Migraines. I quickly recovered from this Freudian slip, but it was interesting to see her reaction when she heard 'IIH'. First of all, it didn't belong in my sentence. Second of all, I could see that she knew it was on my mind especially by the way she tilted her head and the face she made. It wasn't necessarily in a bad way, just interesting to note.
I am always fearful of 'contracting' every aliment/trigger I read about, but I don't want to bypass a possible diagnosis that could help me either. Even though I am in the middle of the elimination diet, I still feel I am getting too many Migraines. Although they have gone down, I don't think it's enough and will still continue with the elimination diet as I feel I am finding 'good' foods on it which will help me in the long run.
While I have a hard time believing I have IIH, you never know until you take the test. The only definitive way to test for IIH is to have a lumbar puncture (LP) to test your opening spinal fluid pressure. I have read different articles written by Teri Robert about IIH that explain everything in an easy to read and easy to understand format: Headache Attributed to Idiopathic Intracranial Hypertension - The Basics and Idiopathic Intracranial Hypertension (IIH) - The Basics.
How many symptoms of IIH do you need to show before you really should consider being tested? Here are some of the symptoms of IIH:
> headache, sometimes daily, sometimes severe, not relieved by medication
> hearing loss
> impaired vision or eventual blindness
> memory problems
> Migraine attacks with unexplained triggers
> pain behind the eyes
> pulsating intracranial noises
> shoulder and/or neck pain
I would say I have six of the eleven IIH symptoms. Some doctors will say that you must have papilledema, which is the swelling of the optic nerve, in order to have IIH, but that's just not true. I have heard of at least three people who have had IIH without having papilledema. This is where I think my doctor is going to make me see a neuro ophthalmologist to test for papilledema anyway.
I'm not sure why I want to have another test that really has no bearing on whether or not you have IIH. I'm sure it would be nice to know if I have papilledema or not, but my eye doctor takes pictures of my optic nerve during every visit already. He also knows I have Migraines as I remind him every time I go. I guess I'm just not sure I want to spend the money on a neuro ophthalmologist if it really isn't worth it. What do you think?
I didn't bring up IIH on the last visit after I slipped and said it. I ran out of time and actually went way over my time with that visit plus I really wasn't ready to discuss it. I don't have every symptom for IIH, but I don't think it would hurt to be tested for IIH to at least rule it out as a contributory factor. I sense that she is going to be a little reluctant to go this route, but I am getting more ready to at least cross it off my list as something I've tried. The elimination diet has reduced some of my Migraines, but it really hasn't gotten rid of some of the everyday nuances I still experience.
If you had a lumbar puncture to test for IIH, how many symptoms did you exhibit before you had the test done? Were you diagnosed with IIH? Were you tested for papilledema? If you had a lumbar puncture, what tests and preparation did you need to do before you had the lumbar puncture done?